I thought about this book again today... One of Us: Conjoined Twins and the Future of Normal
"Must children born with socially challenging anatomies have their
bodies changed because others cannot be expected to change their minds? One of Us
views conjoined twinning and other "abnormalities" from the point of
view of people living with such anatomies, and considers these issues
within the larger historical context of anatomical politics. Anatomy
matters, Alice Domurat Dreger tells us, because the senses we possess,
the muscles we control, and the resources we require to keep our bodies
alive limit and guide what we experience in any given context. Her
deeply thought-provoking and compassionate work exposes the breadth and
depth of that context--the extent of the social frame upon which we
construct the "normal." In doing so, the book calls into question
assumptions about anatomy and normality, and transforms our
understanding of how we are all intricately and inextricably joined. "
